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Monday, February 1, 2010

Hypothyroidism and Hashimoto's

Inspired by the help Diana's comments have been to me, I thought I would give a little update on my health and what my plans are. For most of my adult life, I have been a little overweight, and I have had a really hard time losing weight. Like, I really keep to a good diet and exercise moderately, and nada. I have also always had super low blood pressure, pulse rate, and body temperatures. After I had a baby, things got worse. I had more trouble than ever keeping weight off, and I experienced really bad post-partum depression. I have also always needed a ridiculous amount of sleep (10-11 hours) to feel good and rested. I have a tendency to constipation and super dry skin. I have a bump just above my collarbone that I can feel from the outside and when I swallow. Until recently, I just thought these things were my "normal."

I first got suspicious when I started to really improve my diet and eat paleo. I didn't lose weight like other people. I felt better and knew that it was good for me, but the weight didn't come off. I was very jealous of all these damn bloggers and OEvolve folks who started losing weight by cutting out crappy carbs and eating lots of fat.

Then, I started to feel awful. Those of you who know me know that I am super energetic - like bouncing off the walls, talking 90 to nothing, and always out of the house doing stuff. That changed about a month ago. I started to feel tired all the time. I stopped wanting to do things, and I started to sleep even more. (How many hours a day can a person sleep, for gods' sakes?) I haven't had the mental energy to read books or to work on languages. I haven't had the physical energy to be the active, out and about life learners that my daughter and I love to be. When I don't even want to go to the zoo or to the planetarium, I know something is wrong with me.

I'd been reading on the OEvolve list about Diana's struggles with hypothyroidism, and when Richard Nikoley made a post about hypothyroidism and paleo, I started to wonder. Could this be my deal? So I had some lab tests done on my own. I pay for medical care from a health savings account, so I can't just run down to the doctor to say I feel tired. Plus, I don't trust most doctors as far as I can throw them, so I wanted to have the info myself to research before I went to see an M.D. My lab results weren't normal. My TSH (Thyroid Stimulating Hormone) was out of the normal range by a good bit (5.7). My Free T3 and Free T4 were at the very bottom of the normal range. I also tested above the normal range for TgAB (antibodies that attack the carriers for thyroid horomone.

Basically, what this means is that my pituitary gland is working super overtime spewing out TSH, trying so very hard to make my thyroid make enough hormones. My thyroid is not making enough, as the Free T3 and Free T4 numbers show (these are two of the hormones the thyroid makes, floating free in my blood, ready to be used to regulate metabolism and make me want to go to the zoo). The antibodies present in my blood show that my immune system is busy attacking the little protein trucks that carry the already scanty amount of hormone to my zoo attendance receptors. The antibodies mean that I probably have Hashimoto's Thyroiditis, an autoimmune disorder that causes hypothyroidism.

So, armed with these icky lab results, I started reading. My two highest recommendations are two that I got from Diana: Stop the Thyroid Madness by Janie Bowthorpe and Iodine: Why You Need It, Why You Can't Live Without It by David Brownstein. I learned that all those symptoms I had considered "normal" were NOT normal; they are hypothyroid symptoms. I learned a lot about different treatments. Here's what I have decided to do:

First, I started supplementing with iodine and selenium. Turns out that since I use sea salt (not iodized salt) and don't eat much seafood, I am probably very low in iodine. The amount in iodized salt (if I ate it) is enough to prevent goiters (enlarged thyroids, like mine) and mental retardation, but not enough to keep away thyroid problems and possibly breast cancer. I haven't had the iodine loading test yet (need to do that very soon), but I have started taking 12.5 mg of iodine and 400 mg of selenium daily. I am increasing my iodine to 25 mg tomorrow, but I don't know if I feel comfortable going higher than that without the iodine loading test.

Next, I got a doctor's appointment (this Thursday). I know what I want him to do, and unless he can convince me otherwise with his reason and facts and doctorly expertise, I will go to another doctor if he won't do it. I want to go on dessicated thyroid, not sythetic T4. The reason is that healthy thyroids produce lots of different thyroid hormones, not just T4. Seems logical, and it is backed up with lots of patient experiences, that the dessicated thyroid, which has the full range of thyroid hormones, would work better. I want to start with about 1 grain, and I want to move up to a higher dosage reasonably quickly. I want to be figure out the dosage of my medication based on how I am feeling, and not just on lab tests (especially not just TSH alone).

We'll see how the visit goes. The doctor is one recommended by other thyroid patients on www.thyroid.about.com, though that is no guarantee that he will be knowledgable or willing to do dessicated thyroid instead of synthetic T4. I'll let you all know how it goes.

9 comments:

KiwiObserver said...
This comment has been removed by the author.
Lady Baker said...

Bummer! I'm sad to report that I'm in almost exactly the same boat, going to see the endocrinologist this week. The only difference is that I don't have the antibodies, while I somehow have lots of "autoimmune" thyroid cysts. I've heard that iodine can be very rough if you actually have hashi's. I've read Bowthorpe's book and I just got the Iodine one from the library. My first week on Iodine, I felt much more throat pressure, but that started to ease back toward normal-for-me. I've been corresponding with Diana and another friend, here's to us all getting this under control soon!
-Rachel

KiwiObserver said...

Three thoughts:
(1) Soy blocks absorption of iodine in the body, and just about every modern food product has it. Who knows what GE soy does?
(2) Pthalates interfere with your hormones, but the mechanisms are still unproven.
(3) Sally Fallon highly recommends homemade fish stock made with whole fish containing the thyroid gland as a traditional cure for thyroid disorders and an easy way to ensure that your thyroid gets the nutrients it needs to function properly. Thai green curry is very nice made with coconut milk, pumpkin, green veg and homemade fish stock. So is miso soup with seaweed (a good source of iodine).

Jenn Casey said...

Anything in the books about iodine supplementing while nursing? (Probably not, but thought I'd ask.) Gave up iodized salt years ago, and have been pretty paleo (as opposed to semi-paleo) for a month or so, planning to continue to be. Or maybe I should just eat some iodized salt once in a while? It's alarming how many people have hypothyroid symptoms after being paleo for a while, and would like to avoid this if I can. But worried about impact to the baby. Thoughts?

Lady Baker said...

Perhaps I should do a similar post, just to add another data point. This is a frustrating health challenge.

Jenn, I'm going to read the "Iodine:Why You Need It, Why You Can't Live Without It" book today and I'll let you know if it mentions nursing moms.

-Rachel

Marnee said...

Thanks for sharing this Kelly. I have been following Diana and Monica's stories with great interest and now your's too.

I too started having weirdnesses after a year on zero carb paleo. I gained over 25 lbs in less than 4 months. At first I thought it was just from quitting smoking but the weight kept piling on and I know I was not overeatting, at least not enough to force myself out of homeostasis so dramatically.

I have started to notice some other weirdnesses. My hair is thinning in the front and I have tiny bald spots in my eyebrows. I have always had thick hair and thick eyebrows.

I don't have cold hands/feet, I don't have low energy or fatigue or mental fuzziness or any of the big signs of hypoT. So either my thyroid problem is relatively minor, is soon to get worse?, or I just have scurvy. sigh

I'll be seeing my D.O. soon. I'll get a fully thyroid panel done and vitamin and other blood tests. So we will see.

I hope everything works out well for you and please keep us up to date on your progress.

HUGS Marn

Kelly Elmore said...

Jenn, I am not finished with the iodine book yet, but it hasn't mentioned nursing so far. Since iodized salt has been used to prevent mental retardation for children of iodine deficient mothers, I can't imagine that a reasonable dose of iodine would hurt Sean. I'm not sure I would take a whole ton, but you would just be replacing something your body already needs, not adding a weird thing. Does Kellymom have anything on supplements?

Carolyn,

We don't eat any soy for the reasons you listed. I really like fermented fish sauce, so I might have to make some of that.

Marnee and Rachel,

I am so pissed that all of us have this damn thing (well, a maybe for Marnee, but it sure sounds like it). At least we have some good resources and we can bounce ideas off of each other. I have read about Iodine and Hashi's, but I can feel a positive difference already. I have a bit more energy. The negative is that I have vivid dreams that I can remember. That pisses me off cause can't I ever get a break with my mind just turned off?

Meri, Helsinki said...

Well this is interesting! I've been eating low carb for years now and in Jan 2010 I went totally paleo and lowered my carbs even further. First I lost a little fat but in April I started gaining rapidly. Now I've gained over 10 kgs (!!) of almost solely fat no matter what I do! I didn't change my eating or working out (I know I've been almost overtraining... Tried cutting that back since Dec 2010) and then I tried to eat less and whatnot but I just bloody gain weight. Feeling desperate.

I went to see my doctor last week and she prescribed some lab work such as thyroid. I shall know the results in couple of weeks. But I had my thyroid tested from an urine sample in July 2010 and there was nothing there, but my cortisol levels were sky high. Now I've begun to wonder whether it's still my thyroid causing this weight gain and excess cortisol so I started googling and found you guys. Some peer support at its best... Hope to hear from you and hope to solve my problems as well! I hate this :'(

Anyway, hope all the best for you all.

Derek said...

The first month I started taking bovine capsules , I started seeing results in my body. I experienced major improvements in my attitude as well as weight loss. I would recommend desiccated bovine thyroid capsules to anybody who is having difficulty losing weight.